I have had many new followers in the past week thanks to the I Am A Writer’s $300 Holiday Cash Giveaway that I am participating in. Following my blog is my entrance requirement to the giveaway. I would like to say “thank you” to all my new followers. I hope you will continue to follow along and learn more of my journey with mold-induced illness and multiple chemical sensitivities through my blog posts and my book.
Thank you also, to my loyal followers and especially to those who take the time to not only read my posts but comment and re-blog them.
Posted in Allergic to Life: My Battle for Survival, Allergies and Sensitivities, Chronic Illness and Treatment, Environmental Illness, Mold, Mold Exposure, Multiple Chemical Sensitivity, Toxic Free Living, Uncategorized
Tagged $300 Holiday Cash Giveaway, allergic to life, followers, I Am A Reader, thank you
I have talked many times about how I used to sew so many different things from clothes for my children and myself to shirts for my husband. I sewed Halloween costumes, made curtains, and stuffed animals and dolls.
After becoming ill, I began having issues with visual and sensory over-stimulation due to the mold exposure. I could not look at a pattern piece with its shape andthen place it on a patterned piece of fabric and decide how best to lay it out without having anxiety attacks that led to tears. I gave up sewing because I just could not manage it. What used to be a calming thing to do became a nightmare of gigantic proportion.
This doll (made nearly 20 years ago) was for a friend who wanted a Scottish doll. I took a Raggedy Andy pattern and began designing. I took the shirt that closed in the back and made it open in the front with color and buttons. I used the same pattern and designed the jacket first out of muslin and then out of tweed fabric. I bought red gingham fabric and fashioned the legs to give the appearance of socks. I practiced again on muslin to fashion a kilt that would fit the doll and then using the precious piece of his clan’s fabric made the kilt. The hat was fashioned out of felt and I used orange yarn to make his hair and beard. My father using his upholstery machine and know-how made the bag.
Back of Doll.
It wasn’t until my first granddaughter Sadie was born eight years ago that I attempted to sew again. I wanted to make her a dress. I was going to be a grandma that could make things for her. My first attempt was a simple pattern with bloomers.
Then I wanted to make her first birthday dress which was a huge undertaking. It was made of coordinating polka dots (blue with white and white with blue). It also had many details. I was determined that this grandma was going to figure out a way to sew again.
An American Girl Witch
This same granddaughter asked if I would make a Halloween costume for her American Girl Doll Sage last month. She wanted either a witch or pirate costume. Looking online for doll patterns that would work for American Girl Dolls, I found several. Much to my chagrin they were $17.99 on sale for about $8.99. Still too much for a doll pattern. Armed with my muslin I began trying to create a simple dress and cape. After several attempts, this was the end product. I presented it to my granddaughters (because sister needed one for her doll as well). She loved it. Of course she asked where the hat was and I told her that grandma just couldn’t figure it out. Had this been a request of me ten or eleven years ago, I would have just sat and worked at it until I had a hat.
While my sewing now resembles two different lifetimes, I am so thankful that I have recovered enough to be able to sew again.
And isn’t this the season for thanksgiving? I am so thankful for the things I have managed to get back into my life. I am thankful for my family and the friends who stood by me. I am thankful for my wonderful doctors. I am also thankful for those who I have met and the lessons I have learned because of this illness. I am thankful for all you who follow along with me on my journey and those who have purchased my book to learn more of my journey.
Blessing to you all!
Posted in Allergic to Life: My Battle for Survival, Mind, Mind and Body, Mold, Mold Exposure, Multiple Chemical Sensitivity, Mycotoxins, Reactions, Spirit
Tagged allergic to life, Overcoming obstacles, Sensory over-stimulation, sewing and visual over-stimulation, thanksgiving, Visual over-stimulation
The Allergic to Life Giveaway is over and I am excited that there were 496 entrants in the Goodreads Giveaway. Goodreads selected the three winners and all books are on their way. One of the winners is a fellow Rave Reviews Book Club member, Kenneth Kerr. Congratulations Kenneth your book is on its way!
During my Giveaway, I promised that I would also give away three e-books. Using a generating tool, I entered the names of all the contestants who commented on my giveaway blog posts. I have sent an email to each winner with information on how to claim their prize. Congratulations to:
Because of the number of those commenting, I chose to have one more name selected. I would also like to congratulate: Princess and the Pea.
Posted in Allergic to Life: My Battle for Survival, Allergies and Sensitivities, Chronic Illness and Treatment, Courage and Hope, Environmental Illness, Mold Exposure, Multiple Chemical Sensitivity
Tagged Allergic to Life Giveaway, and hope, And The Winners Are!, courage, e-book giveaway, environmental illness, Goodreads Giveaway, Rave Reviews Book Club, survival
I am still dealing with my partial deep vein thrombosis. In my last post dated October 1st, Be Careful Around Sharp Objects, I talked about discovering that my INR (prothrombin clotting and international normal ratio) was at 5.9 and I was to stay off the Warfarin for 2 days and retest on Friday, October 3rd. I did the retest and my level was still at 5.9. My doctor had me to continue to stay off Warfarin through the weekend and retest on Monday. Monday my level was 4.3 (still too high). On Wednesday my level had gone down to 3.7 and my doctor’s MA phoned and said I was to start up again but at 4 mg.
As I have said many many times, you need to listen to your intuition. Your gut does not lie. After doing some research I learned that my antifungal medication could have an affect with the Warfarin causing my blood to be too thin. I could not stop the antifungal without risk of a recurring infection. I phoned my doctor’s office again and asked to speak with the doctor. I explained my sensitivities to medication and what I had learned about the antifungal medications. She agreed to have me take 2.5 (half of my 5 mg) tablet for a week and then retest. I had my blood drawn this past Tuesday because I was meeting with the hematologist for the first time. My husband needed my car on Tuesday so I opted to drive the truck. I got to the doctor’s office only to find that I had my necessary paperwork, a steno pad for notes, but not my Kindle (it was in my car). Following are the notes I wrote while waiting to meet my new doctor, the hematologist.
The first thing I notice about the waiting room is that it is quiet, there is no carpet, and only a few others are in the waiting room along with me. Then I see the sign on the counter. It says something about being patient because the wait could be an hour. I can watch old reruns of Bonanza or I can sit and try and pass the time writing in my steno pad. Maybe I will start my blog post that I had planned to do a few days ago. My doctor is a Medical Oncologist and Hematologist so there is a lot of serious treatment going on in this office. A woman in a wheelchair has just been pushed into the waiting room. And of course the first thing I notice is the can of Diet Dr. Pepper in her hand! I am containing myself. All I want to do is run up to her and shout out how dangerous this is for anyone and particularly someone with health issues. Of course, I am sure this won’t go over well. I can just see her face as she looks at this woman hiding behind the mask telling her what she should or should not be drinking.
The time seems to be dragging on. I work on this blog draft and I work on a short story. Anything to keep my mind occupied and off the reruns and what the hematologist is going to say about my leg and all the labs that have had me scared to death ever since I first learned that I have two mutations that can cause blood clots as well as a possible Protein S deficiency (although a test years ago said I didn’t have it).
Finally, the MA comes to get me. I am led to the back and all my vitals are taken. My blood pressure is 143/80. This is high for me. Is it because it is late in the day? Is it the stress of meeting this new doctor and not only having to discuss my current problem but filling her in on all my past history? Is it the Warfarin?Then I am asked to stand against a wall while she takes a picture of me. Smile she says and I laugh to myself. Who would know if I was smiling or not behind the mask? I am then led to a room to go over the paperwork I had filled out and the list of my many allergies and sensitivities. Okay…she wants me to go over each medication I have placed on the list and tell her what kind of reaction I get from it because she has to list all this in the EMR. We are going to be here all day just doing this. Finally she says can you tell me which are the most severe. Taking the paper and pen I begin putting an “S” by those that have caused the most severe reactions. As I do so I say things like “this one sent me to the ER”, “this one caused photosensitivity”, this one sent me to the ER” , etc. until I am finished with the list. The MA tells me the doctor will be in shortly to talk with me. By now I have been in the office about 45 minutes, something I am not accustomed to since Dr. Spitzer and Dr. Butler see me as their first patient.
The light in this room is so very bright! I can hear the clock on the wall tick tick ticking the seconds and minutes away. Between the light and the ticking of the clock I can feel my body being overstimulated! Should I turn off the light? I desperately want to drag a chair over to the door, step up on the cushion and yank the clock from the wall. Oh how I wish I had my Kindle. I could distract my mind from the clock if I could only just sit and read. My eyes look around the room in hopes of finding something to distract me. There it is. Sitting at the sink is a bottle of antibacterial soap. Oh, please don’t let the doctor come in and decide to use the soap. Is it possible I can stop her first? I can hear chatter outside my room. There is so much going on that my poor brain is in overload and I feel exhausted just from the noise and light. I am so thirsty! I don’t dare drink anything because I cannot risk having to go to the bathroom. I really want to be here and see this amazing doctor yet my body is yearning for quiet and dark.
The doctor comes in (continued in Part 2).
I apologize if my thoughts are scattered and this seems to ramble on.
Posted in Allergic to Life: My Battle for Survival, Allergies and Sensitivities, Antifungal Treatment, Chronic Illness and Treatment, Courage and Hope, Environmental Illness, Medical Procedures, Mold, Multiple Chemical Sensitivity, Reactions, Uncategorized
Tagged allergic to life, DVT, environmental illness, hematologist, Hematology, INR level, multiple chemical sensitivity, Protein S Deficiency, Warfarin