Tag Archives: drug allergies

Identification–Please : a reblog

It has been some time since I have taken the opportunity to look at searches that have led others to my blog.  The last few days there have been several search words that have shown up on both days.  Today I will address the search of “allergic to penicillin and cipro, should I wear medical id jewelry”.  I think if anyone has a serious allergic reaction or sensitivity to medication especially, it is not a bad idea to have some type of medical identification bracelet.

I wrote a post on October 15, 2012 after reading a wonderful post by the same name from Lindsay at musings of a dysautonomiac .  My original post follows with a link to Lindsay’s blog post as well.

This was the title of a post by a fellow blogger.  I have borrowed the title.  Many folks with severe illnesses such as heart disease, penicillin allergies and diabetes wear some form of medical identification bracelet or necklace to alert medical personnel of their condition.  I had heard about Medic-Alert  (www.medicalert.org) here in the US and knew of people who wore these necklaces and bracelets.  I always thought they were ugly and was grateful that I didn’t have to wear one.

There is a saying “be careful what you wish for”.  In my case “don’t get to smug or it will slap you in the face.”  I had been sick for about a year and began developing more allergic symptoms to medications than I could keep track of.  Then I began developing sensitivities to chemicals.  Finally I had to break down and give in to the ugly gold chain and ID tag.  I have worn it faithfully and replaced it when the chain clasp has worn and become broken.  The bracelet has been invaluable on more than one occasion when access to my medications and allergies has been needed.  Medical personnel merely need to dial the toll-free number and immediately get my information.

Recently I saw that the bracelets are now offered with beaded bracelets rather than the clunky chains.  My own bracelet has been coming undone in the middle of the night and I end up away from home without realizing that I don’t have it.  The clasp is wearing out.  I have always wanted something more delicate; something that looks more like jewelry.  Then the brainstorm hit.  A very dear friend of mine makes jewelry and is going to make me a one-of-a-kind beaded bracelet to attach to my ID bracelet.

What does my bracelet say?  Asthma – Allergic Latex – Drug, Food and Chemical Allergies.

Do you have a medical identification bracelet?   What does yours say?

Thank you Lindsay for your blog post that has led to my own.  Lindsay has begun designing bracelets to wear with her own medical identification tag.  Visit Lindsay’s blog to learn her story and see the bracelets she has designed for herself:  http://dysautonomiac.com/2012/10/15/identification-please/

Another one of my amazing doctors.

For those of you who have read my book, you know of my gynecologist, Dr. Evans.  When we thought I had ovarian cancer and I couldn’t find anyone willing to take me on because of my acute chemical sensitivities and allergies to medications, Dr. Evans stepped up to the plate.  I am so lucky to have had him for my doctor and count him as a friend on Facebook today.  Thank you Dr. Evans.

This is the amazing Dr. Evans that I describe in my book.

This is the amazing Dr. Evans that I describe in my book.

Halloween Costumes

Halloween is almost upon us and I am making Halloween costumes for my grandchildren.  I am making a witch costume complete with hat, a cowgirl costume with sequins and a witch apron for my daughter.  It is so exciting to be able to do this for my daughter and granddaughters.

There was a time, however, when I never thought I would be able to sew again.  The time was the fall of 2002.  I was facing a hysterectomy and the possibility of ovarian cancer.  I had already been sick for three years from a mold exposure at work.  Not only was I facing the upcoming surgery and cancer scare, I was flying back to Dallas to have my surgery.  I don’t know what scared me the most the cancer or the surgery.  You see I had already developed an acute sensitivity to chemicals and an alarmingly long list of allergic reactions to medications.  Would I survive going through the surgery?  If I did survive the surgery but had cancer would I be able to tolerate the chemo drugs?

My mortality was starring me hard in the mirror.  My daughters were both in college.  What could I leave for them?  I had always sewn and created things from their clothes, my clothes, shirts for my husband and an assortment of dolls and other crafts.  A friend of mine had made this beautiful primitive angel quilt wall hanging.  I asked her to help me by going into the fabric store to by the pattern and all the necessary fabrics and notions.  If I wasn’t going to return from Dallas I could at least give each of the girls something that I had made especially for them.

The next week I set about laying out all the fabrics and cutting out the pattern pieces.  As I began the process of trying to choose which fabrics would be used with which of the angel pattern pieces I began to feel dizzy, my vision seemed to blur and my brain went into overdrive.  I had never experienced an anxiety or panic attack but I was having one then.  Tears flowed and I began to shake.  I was experiencing severe sensory overload.  This couldn’t be happening.  I quickly put everything back into a bag and put it away.  A few days later I made another attempt at laying out all the brightly colored and patterned fabric with the various pattern shapes for the quilt.  Once again, that panicky feeling came over me and again I began to cry and shake.

Dealing with depression had become a regular part of my life since becoming sick.  The thought of not being able to ever sew again began to sink in.  What was I going to do?  So much had already been taken away from me and now my one true creative outlet was gone as well.

I have read and been told that when your body is overloaded with toxins and the toxins cannot be excreted through the body in the normal pathways through the liver and kidneys, the toxins find other pathways including the brain.  I believe that this is what was causing the brain fog I was already experiencing as well as this new found discovery that visually looking at bright colors and shapes brought on anxiety and panic.

Four years later when my granddaughter was born I yearned to make something for her.  I desperately wanted to make her a dress.   I searched the internet for a very simple pattern that did not have a lot of pieces and required very little in the way of extras.  I ordered the pattern and a simple striped seersucker.  The fabric arrived and after washing it a few times to be sure I could tolerate it I began the process of making a dress.  I fought the anxiety of laying out basically only two pattern pieces on striped fabric.  Something that used to feel so natural and was so relaxing to me now felt awkward and made me nervous.  I managed to complete the task.  Since then I have gradually tried patterns that were a little more challenging and fabrics with more color.  I still won’t buy a pattern that requires a zipper.  I am literally terrified about putting one in.  I ordered a zipper with intentions of practicing on scraps of fabric.  The zipper still sits in its paper packaging.

Recently I was trying to read a blog that I wanted to follow.  I have tried more than once but cannot tolerate all the visual stimulation on the page.  The colors, the designs and all the material scattered across the page just sends me into a panic.  I have tried to keep this blog simple and hope that my webpage will also be calm and easy to navigate.

I keep trying to push through this craziness of visual sensory overstimulation.  I don’t know if it will ever go away but I am trying my hardest not to let it rule my life and take away things I once loved to do.  Below is a picture of the apron I just finished.  As you can see from the details, this took a lot to work out and get myself through with the colors, patterns, and shapes.

Daughter’s apron

Identification, please

This was the title of a post by a fellow blogger.  I have borrowed the title.  Many folks with severe illnesses such as heart disease, penicillin allergies and diabetes wear some form of medical identification bracelet or necklace to alert medical personnel of their condition.  I had heard about Medic-Alert  (www.medicalert.org) here in the US and knew of people who wore these necklaces and bracelets.  I always thought they were ugly and was grateful that I didn’t have to wear one.

There is a saying “be careful what you wish for”.  In my case “don’t get to smug or it will slap you in the face.”  I had been sick for about a year and began developing more allergic symptoms to medications than I could keep track of.  Then I began developing sensitivities to chemicals.  Finally I had to break down and give in to the ugly gold chain and ID tag.  I have worn it faithfully and replaced it when the chain clasp has worn and become broken.  The bracelet has been invaluable on more than one occasion when access to my medications and allergies has been needed.  Medical personnel merely need to dial the toll-free number and immediately get my information.

Recently I saw that the bracelets are now offered with beaded bracelets rather than the clunky chains.  My own bracelet has been coming undone in the middle of the night and I end up away from home without realizing that I don’t have it.  The clasp is wearing out.  I have always wanted something more delicate; something that looks more like jewelry.  Then the brainstorm hit.  A very dear friend of mine makes jewelry and is going to make me a one-of-a-kind beaded bracelet to attach to my ID bracelet.

What does my bracelet say?  Asthma – Allergic Latex – Drug, Food and Chemical Allergies.

Do you have a medical identification bracelet?   What does yours say?

Thank you Lindsay for your blog post that has led to my own.  Lindsay has begun designing bracelets to wear with her own medical identification tag.  Visit Lindsay’s blog to learn her story and see the bracelets she has designed for herself:  http://dysautonomiac.com/2012/10/15/identification-please/