Tag Archives: low dose antigen therapy

LDA (low dose antigen therapy) Critical Day 3

Hooray, I have eaten my last of the lamb stew!  While I still have to be careful for the next few days and still stay away from pollen and newsprint, it is liberating to be able to eat something for breakfast tomorrow other than ground lamb and hash browns.  Maybe eggs and a piece of yeast-free toast.  Whatever I choose it will be a pleasant change.

This treatment my body reacted different than it has before.  Usually my inhalant spot gets a big wheal, bright red and itches like the dickens for a good three days.  The chemicals and foods grow some, stay red for most of the day but by this time are almost invisible.  This time around my inhalant is almost invisible and the chemical and food areas are still red.  I don’t quite get it.  I may need to contact my doctor’s office to find out if this is something I need to worry about.  All in all I am doing ok.  I still have a bit of a headache and am still pretty tired but that will go away on its own soon enough.

If all goes well, I won’t be doing this again for five months.

LDA (low dose antigen therapy) Critical Day 2, cont.

Bless my dear husband.  Once again, he drove me to San Francisco for my LDA treatments.  We left at 8:00 a.m. for an 11:00 a.m. appt.  The drive usually takes 2 1/2 hours giving him a little leeway with traffic.  Traffic was great and we got there a half hour early.  I met with my doctor and discussed my nutrigenomics test and he suggested making sure my B12 injections are Methylcobalamin (need to verify that with my doctor) and also suggested that since my methylation pathways have mutations that I also take TMG (trimethylglycine).  Also I need to add lecithins to my IV’s along with the already used Magnesium, Vitamin C and Glutathione.

I am home and yes my headache is with me (nothing unusual about that).  I got it about 3o minutes after I left the office.  My brain is also a little fuzzy and my concentration is not so great.  On the positive side is that I am not itching nearly as much with the inhalant component of the treatment as I usually do.  Maybe this is a good sign that I won’t be flailing my arm around tonight to distract myself.  I am not allowed to scratch the wheals, put anything on them or ice them.

I ate my lamb stew on the way home as my dear husband munched on his Jack in the Box burger, fries and drank a soda.  NOTE TO SELF:  Order the thermos today.  The stew wasn’t cold but it wasn’t hot either.  (I had purchased a thermos but the stew still wasn’t hot.  I am not sure if I didn’t get it hot enough before adding or if I need to find a different thermos.)

I received three injections today.  In my left arm I received the Inhalants (pollens, dust, molds).

Inhalant Injection on left arm.

Inhalant Injection on left arm.

On my right arm I received two injections (foods and chemicals).  You can see that the food injection is swollen but the chemical spot is just a red splotch.

Right Arm - Chemicals and Foods.

Right Arm – Chemicals and Foods.

I will report back tomorrow on Critical Day 3.

LDA (low dose antigen therapy) Critical Day 2

Hello Everyone.

I just finished eating day two of ground lamb and hash browns for breakfast.  My lunch time meal of lamb stew is heating on the stove in preparation for the thermos that I have finally purchased.   My water is in the car, my ipod has been charged, and my Kindle is charged and loaded with a new book.   I am preparing for the 2 1/2 hour trip each way to get my LDA.  I am anxious to get it done and to be one day closer to finishing the critical 3 days and to getting all those yummy foods back into my diet.

Today I am meeting with a new doctor because my doctor left the practice.  I am looking forward to meeting the new doctor (a naturopath) and getting and having him sign off to continue with the protocol there. 

I am not looking forward to the headache that usually follows for a day and the itching arms that usually last for 2-3 days.  In the end it is all worth it.  If I am not feeling too uncomfortable later today I will post more.  I will also try to respond to all comments as well. 

LDA (low dose antigen) Critical Day 1

Ok, I am officially in the Critical Days of my LDA treatment.  This morning I had my ground lamb patty and hash browns cooked in lamb fat (boy that sounds like something from the 1800’s doesn’t it).  I am dining on my delicious lamb stew and sipping on sparkling water as I type this post.  My books are put away until I can safely read them (about five days after my shots).  So I sit here with blank paper, pens, and my computer.  In the background is my stereo playing some old songs from the past.  Songs that bring back memories of life before illness.

Breakfast for LDA

Breakfast for LDA

LDA (low dose antigen) therapy is an immunotherapy that takes multiple antigens in extremely low doses and is combined with a mixture of enzymes including beta-glucoronidase.  Beta-glucuronidase is an immune modulator found in all cells and activates extremely low amounts of various allergens (extremely small amounts when compared to standard allergy injection materials) and stimulates the production of “T-suppressor cells”.  Suppressor cells turn off the “helper cells” that causes the misidentification of normal substances in the body that get mislabeled as allergens or as foreign invaders, which in turn leads to an abnormal immune reaction, causing illness symptoms and problems.   T-suppressor cells take a while to mature in the bloodstream allowing LDA to be administered every two-three months in the beginning then less often as time progresses. I started out taking my injections which are given on both forearms every two months and now have progressed to every four-five months (tomorrow’s treatment will have been five months since the last).

Some patients receive immediate benefit from the first shot but the results usually do not last until the next treatment.  It takes about six treatments before symptom relief lasts longer and LDA can begin to be spread out.  I noticed a sudden relief in my inhalant allergies/sensitivities.  Treatments four and five caused my symptoms to be worse and I stayed congested most of those four months.  However, treatment six turned everything around and I began to spread out my treatments.  I would extend my time by two weeks eventually getting me to where I am at.  After the fourth or fifth treatment I was told to try foods that had been a problem for me in the past.  I was told to take my pulse, eat the food and wait 15 minutes.  I was instructed then to continue to check my pulse every 15 minutes for an hour.  If my pulse did not rise over ten points I was safe with the food.  My own body was my indicator.  If no problem then I could try another food in two days, four days if I had a problem.  I ate corn, oatmeal, strawberries, almonds, lettuce, soy and tomatoes.  None of these caused any rise in my pulse nor did they give me any symptoms.  I bought an organic cantaloupe.  I did not even need to check my pulse after eating because I immediately reacted with itching in my mouth and ears, tightness in my throat and sinus congestion. 

I have noticed that while my chemical sensitivities are not gone, my tolerance is better than it was.  I have not given up my charcoal mask when I have to be in public places like the doctor’s office or a quick trip to the grocery store.  My reactions while still apparent, aren’t as disabling as they once were.  I still get brain fog and I still cough but I don’t cough until I gag and my recovery is quicker once away from the offending chemical and once I have given myself  histamine or Vitamin C. I tried going without my mask once in a public place and found a loss for words, couldn’t hold the pen correctly, my writing was erratic and didn’t make much sense, I was hoarse, had a headache and began coughing.

I mention the critical 3-day period.  During this period, patients are asked to avoid printed material, chemicals, pollens and dust (clean house a few days before) and stop all supplements and medications.  There is a list of medications that can cause LDA to fail among them Gabapentin, Cytomel, Tylenol.  In order for me to start LDA I had to switch my thyroid medications and get myself off Gabapentin.  A week before LDA I stop all supplements with the exception of Zinc, Magnesium, Vitamin C (but can only take 500 mg.), a Multi-Vitamin, Probiotic and Gastro Mycin.  During the critical 3-days I stop my thyroid treatment but continue my anti-fungal on days 1 and 3.  After the third day I resume  my thyroid medication and the supplements I started the week before and continue for two weeks before adding any other supplements back in and upping my Vitamin C dose back to 1-2,000.  I also must wait two weeks after my LDA dose to add the foods I gained back into my diet like corn and almonds.  Two weeks may seem like a long time but I see it as a small price to pay to have those foods in my diet for four months.

I believe LDA has taken me that next step further in my healing.  How long will I need to continue?  I don’t know. My goal now is to reach every six months.  Do I like the rigid 3-day protocol?  No, but I have begun to think of it as a vacation (a vacation from printed material, from cleaning, from having any encumbrances on my time).  I am free to sit and watch movies, visit with friends on the phone, do some embroidery and just be.  In the beginning I dreaded the process but now I embrace it knowing the end result.  I find that I truly savor what I eat after having three days of a very restricted diet of lamb stew. 

There is a lot of information about LDA if you search for it on the internet.  It is not widely known about and most have learned about it through word of mouth.  The downside is that it is not covered by medical insurance.  The fact that treatments are initially every two months and eventually spread out may make this a more cost-effective treatment.  I can’t quote prices because each physician charges different rates for their treatments.

Preparing for LDA

Tomorrow starts my three critical days during my LDA treatment which is the day before treatment, the day of treatment and the day after.  It is during these days that I have to be the most careful.  The diet for those three days because I am receiving treatment for food allergies/sensitivities is very specific.  If I veer from the foods allowed I risk becoming sensitized to them and could possibly lose them until my next treatment.  I am now doing treatments every four to five months so that would be miserable to lose a food for that long because I didn’t follow the protocol.

My house smells of lamb; the smell of lamb stewing in a pot and the smell of lamb frying in a skillet in attempt at rendering out the fat.   During the critical three days I am not able to use any spice other than non iodized salt.  I am not able to use any oils so I use lamb fat to fry my ground lamb patty and shredded potatoes that I eat for breakfast.  Breakfast is the same all three days.

I am allowed to eat either lamb, rabbit (not easily available), venison (if rarely eaten but I have eaten it a lot over the last few years) or fish.  I find that lamb is the easiest.   I am allowed sweet potatoes or yams, parsnips, rutabagas, tapioca or cassava root, cooked carrots, celery and cabbage, rhubarb, bottled or filtered water (I use only bottled water in glass).  During my first few treatments I would could cook a lamb roast with potatoes, celery and carrots and sweet potatoes.  I ate this for all three meals for three days.  By the second day I didn’t even want to eat.  The roast would become dry tasting and the potatoes wouldn’t taste so great.  Just before one session I decided to try making the lamb stew (lamb, potato, sweet potato, celery, cabbage and carrot).  I found it filling and easy to heat up.  The problem was that I didn’t like it for breakfast.  My next brilliant idea was to buy ground lamb and organic  hash browns.  I cooked the lamb in a skillet and because I could not use oil put the hash browns on a tray in the oven.  While it was a change it wasn’t great.  While chatting with others on a site dedicated to EPD/LDA patients I learned about rendering the fat.  I now have a ground lamb patty and  the hash browns cooked in lamb fat for breakfast and stew for lunch, dinner and a snack if I am hungry.  The three days fly pretty fast.

My drive to my doctor’s office is 2 1/2 hours each way and I find that the lamb stew is the easiest to take with me for my lunchtime meal.  I can heat up a glass jar with boiling water, then pour it out and add my lamb stew.  I wrap it in foil and a towel and it stays fairly warm until I am ready to eat it.  Every time I tell myself that I am going to buy a stainless thermos for next time.  And I never think about it again until next time.

Tomorrow I will post more on the LDA protocol and how it works.

LDA (low dose antigen)

I am nearing my preparation for my next LDA (low dose antigen) therapy.  I start the protocol in three days.  I have mentioned this therapy in past posts and will attempt to explain it this weekend when I start.

Why am I still sick on a 4-day rotation?

When checking the stats on my blog today I discovered that someone had searched “why am I still sick on a 4-day rotation”.  There could be many reasons.  One reason could be that he/she needs to extend the rotation diet to a 6-day or 8-day rotation.  This is because for some they have a longer transit time through the bowels and out of the body.  A 6-day or 8-day rotation diet can be difficult though if you don’t have many foods to rotate.

Another reason is that the person may be just too allergic to the foods and rotating them still isn’t enough as corn was for me.  While re-reading “Rotational Bon Appetit Cookbook” available from the Environmental Health Center-Dallas I discovered some other possible causes.  For some eating more than two food items in the same meal can cause problems and they must follow a mono-rotation diet.

In following a strict rotation diet, it is advised that if you are having a certain food on Day 1 ( corn for example) that you do not have it in more than one meal for that day.  You may have popcorn, corn, corn tortillas and corn oil together in the same meal.  It is not recommended, however, that you eat corn tortillas for dinner and then have popcorn later that night for a snack.  I found myself guilty of doing this sometimes and would have to rethink about whether or not I really needed a snack.

I have also read from information I have for my LDA (low dose antigen) therapy.  One suggestion is that a person eat several different foods in a meal but only one to two tbs. of each item.  I will talk more about this when I discuss the LDA therapy.