I woke up this morning to the all too familiar feeling in my face. My left eye feels like it is being stabbed with an ice pick and the searing pain from my eye to my ear to my jaw is back.
My trigeminal neuralgia used to be with me at all times. It was so bad that I had to take a pain pill just to be able to get out of bed and function. Sometimes I would make it through the day without one but never could I go to bed without taking one unless I didn’t mind not sleeping. I wrote a post about this in October 2012.
So what brought on the neuralgia? I have no idea. My sinus infection is over unless the horrible air quality we are experiencing (unhealthy for sensitive) triggered something. I was outside a little yesterday when I met my daughter to give her something she had left here before she headed out-of-town. Whatever the cause, the neuralgia is here. My solution: Taking plenty of magnesium and vitamin C to ease the inflammation. As I am typing this, it is nearly noon and I am still in my jammies and slippers. I think that is going to be the way I spend the day. Here at my desk I am working on paperwork that needs to be finished for the end of the year and sipping plenty of hot tea.
I hope you all are having a relaxing and/or productive day.
Posted in Allergic to Life: My Battle for Survival, Courage and Hope, Allergies and Sensitivities, Chronic Illness and Treatment, Environmental Illness, Mold, Mold Exposure, Multiple Chemical Sensitivity
Tagged allergic to life, chronic illness, chronic pain, environmental illness, multiple chemical sensitivity, pain, trigeminal neuralgia
Mold and trigeminal neuralgia were put in the search engine today. I have talked vaguely about my having trigeminal neuralgia. For those not familiar with trigeminal neuralgia, it is a condition that affects the trigeminal nerve, one of the largest nerves in the head. It is responsible for sending impulses of touch, pain, and pressure from the face, jaw, gums, forehead, and around the eyes. Trigeminal neuralgia can feel like a sudden severe shock-like or stabbing pain on one side of the face. These attacks can last several seconds and happen over and over throughout the day. Some attacks can last months at a time.
I began developing trigeminal neuralgia as the bacterial and fungal infections in my sinuses continued bombarding me one right after the other. I developed osteomyelitis (bone infection) in the sinus bone. I had several surgeries to keep scar tissue and the infection cleared from the bone and the sinuses in general. The pain was so intense. I was on pain medication from surgery and it seemed to help. I couldn’t stop the pain medication or I couldn’t function. I needed a pain pill in order to stop the pain in the morning so I could get up and start my day and head to work. I needed a pain pill sometimes in the middle of the day so I could focus on my job. Lastly I needed a pain pill to numb myself enough to be able to try to sleep. The pain was so intense that I felt like an ice pick was being jabbed into my left eye and twisted. The pain would radiate down through my left maxillary sinus, my jaw and my left ear.
When my ENT thought I had been on pain medication too long, he decided to try me on Neurontin (Gabapentin). It took a large dose to calm the nerves down. I think the maximum dose was 1800 mg. and I was on 1200 mg. The face and eye pain calmed down but at the expense of the side effects of the Neurontin. The side effects for me were dizziness. I was so dizzy that I was afraid to drive and once walked several miles to and from his office to avoid driving and the possibility of an accident.
As time as moved and we have been able to keep my sinuses in better order, the neuralgia is less frequent. An exposure to a chemical that I might come into contact with will cause the nasal passages to swell, produce large amounts of mucous and trigger the neuralgia and the pain. I no longer do well on Neurontin or pain medication (probably from taking so much of it). Now when it flares I just have to apply heat and rest and wait it out. A sinus infection whether bacterial or fungal will also trigger the return of the symptoms. We have to keep my antifungal treatment at a level that keeps the fungal infections from re-occuring as often. I am including a picture of the trigeminal nerve to show how much of the left side of my face is affected when I have a flare-up.
Posted in Antifungal Treatment, Environmental Illness, Medical Procedures, Mold Exposure, Multiple Chemical Sensitivity, Mycotoxins, Reactions, Uncategorized
Tagged acute allergies, environmental illness, fungal infections, multiple chemical sensitivity, Neurontin, osteomyelitis, pain, pain medication, trigeminal nerve, trigeminal neuralgia