Tag Archives: trigeminal neuralgia

I have trigeminal neuralgia why is eye pain bad?

This was a search engine question that led someone to my blog recently.  I have talked about it before in another post entitled Mold-Trigeminal Neuralgia.

I am posting an image that shows the nerve and its roots.  As you can see, the nerve goes right near the eye.  This explains the reason behind the eye pain of the person who was looking for answers.  It also explains why someone suffering from trigeminal neuralgia is in such acute pain.  While I deal with some level of pain daily (today because I am having sinus issues the level is about a 5), thankfully I haven’t had a really bad flare up in a while.  I feel the pain along all the yellow lines shown in the diagram.  It feels like someone is stabbing an ice pick in my eye.  My teeth can hurt, my jaw hurts, my left ear hurts, I hurt along the left side of my nose and underneath my left eye as well.  For a very long time I lived on pain medication.  Pain medication in order to just get out bed and shower, pain medication to calm it down during the day so I could continue to function, and pain medication at night so I could go to sleep.  Then I became sensitized to the medication and it began making me sick.  I use hot packs on my face because cold packs seemed to make it worse.  I use acupuncture and acupressure.  I irrigate my sinuses with warm water to calm the enraged nerves and tissue.  If it is really bad I take a compounded acetaminophen tablet to calm it a little.

File:Gray778 Trigeminal.png

For those who suffer from trigeminal neuralgia, you have my deepest sympathy.  Have any of you been diagnosed with trigeminal neuralgia?

I was doing just fine without my old companion.

I woke up this morning to the all too familiar feeling in my face.  My left eye feels like it is being stabbed with an ice pick and the  searing pain from my eye to my ear to my jaw is back.

My trigeminal neuralgia used to be with me at all times.  It was so bad that I had to take a pain pill just to be able to get out of bed and function.  Sometimes I would make it through the day without one but never could I go to bed without taking one unless I didn’t mind not sleeping.  I wrote a post about this in October 2012.

So what brought on the neuralgia?  I have no idea.  My sinus infection is over unless the horrible air quality we are experiencing (unhealthy for sensitive) triggered something.  I was outside a little yesterday when I met my daughter to give her something she had left here before she headed out-of-town.  Whatever the cause, the neuralgia is here.  My solution:  Taking plenty of magnesium and vitamin C to ease the inflammation.  As I am typing this, it is nearly noon and I am still in my jammies and slippers.  I think that is going to be the way I spend the day.  Here at my desk I am working on paperwork that needs to be finished for the end of the year and sipping plenty of hot tea.

I hope you all are having a relaxing and/or productive day.

Catch Up Mondays: Mold – Trigeminal Neuralgia revisited

Periodically I get searches for mold and trigeminal neuralgia.  I posted this on October 15, 2012.  While I don’t have the constant pain I had for many years, a reaction or a sinus infection can set me off with pain all along the left side of my face and the feeling of an ice pick being stuck in my left eye.  I am sharing this again for those who may have similar symptoms.

Mold and trigeminal neuralgia were put in the search engine today.  I have talked vaguely about my having trigeminal neuralgia.  For those not familiar with trigeminal neuralgia, it is a condition that affects the trigeminal nerve, one of the largest nerves in the head.  It is responsible for sending impulses of touch, pain, and pressure from the face, jaw, gums, forehead, and around the eyes.  Trigeminal neuralgia can feel like a sudden severe shock-like or stabbing pain on one side of the face.  These attacks can last several seconds and happen over and over throughout the day.  Some attacks can last months at a time.

I began developing trigeminal neuralgia as the bacterial and fungal infections in my sinuses continued bombarding me one right after the other.  I developed osteomyelitis (bone infection) in the sinus bone.  I had several surgeries to keep scar tissue and the infection cleared from the bone and the sinuses in general.  The pain was so intense.  I was on pain medication from surgery and it seemed to help.  I couldn’t stop the pain medication or I couldn’t function.  I needed a pain pill in order to stop the pain in the morning so I could get up and start my day and head to work.  I needed a pain pill sometimes in the middle of the day so I could focus on my job.  Lastly I needed a pain pill to numb myself enough to be able to try to sleep.  The pain was so intense that I felt like an ice pick was being jabbed into my left eye and twisted.  The pain would radiate down through my left maxillary sinus, my jaw and my left ear.

When my ENT thought I had been on pain medication too long, he decided to try me on Neurontin (Gabapentin).  It took a large dose to calm the nerves down.  I think the maximum dose was 1800 mg. and I was on 1200 mg.  The face and eye pain calmed down but at the expense of the side effects of the Neurontin.  The side effects for me were dizziness.  I was so dizzy that I was afraid to drive and once walked several miles to and from his office to avoid driving and the possibility of an accident.

As time as moved and we have been able to keep my sinuses in better order, the neuralgia is less frequent.  An exposure to a chemical that I might come into contact with will cause the nasal passages to swell, produce large amounts of mucous and trigger the neuralgia and the pain.  I no longer do well on Neurontin or pain medication (probably from taking so much of it).  Now when it flares I just have to apply heat and rest and wait it out.  A sinus infection whether bacterial or fungal will also trigger the return of the symptoms.  We have to keep my antifungal treatment at a level that keeps the fungal infections from re-occurring as often.  I am including a picture of the trigeminal nerve to show how much of the left side of my face is affected when I have a flare-up.

File:Gray778 Trigeminal.png

I have tremors only on the right side of my body.

Again this was a search that led someone to my blog. I have talked about my having tremors around mold  and mycotoxins and while testing molds and mycotoxins. My tremors are always on the right side of my body and start with my right hand beginning to shake until my arm starts, my leg starts and then my whole head and neck shake.   This is followed by my face feeling as if the skin is being stretched tightly and I can’t breathe during the facial spasms.  When they stop, I gasp for air and then the ordeal repeats itself over and over.  For me I believe the fact that my tremors are always on the right side of my body may have to do with the fact that the left side of my head was most affected by the mold, bacterial and fungal infections.  The trigeminal neuralgia I often talk about affects only the left side of my face.  Using this train of thought and knowing that I have problems with my brain with short-term memory, loss of words, etc. the left side of my brain could be affected and have a direct impact on the right side of my body especially when I am exposed to molds and mycotoxins.

Do any of you mold sufferers have these types of tremors.  Do you have a side of your body that seems most likely affected?

Oh the pain of it all!

I have talked in several posts about trigeminal neuralgia and the fact that I suffer from it.  For some unknown reason it has picked today to rear its ugly head.  The nerves on the left side of my face hurt and burn.  It hurts to blink my left eye and the left side of my lip feels numb.

There isn’t much I can do for it.  I am preparing for my LDA treatment on the 15th of this month and have to be especially careful of anything that I take.  I have compounded Tylenol but am not supposed to be using it right now.   The only option right now is to heat up my bean bag and place it on my face to see if the heat will calm it down.

Bring on the probiotics!

Well today I saw my ENT.  This wonderful doctor has been treating me since the beginning of my ordeal.  He put me on thyroid medication despite my levels being in the normal range because nothing else was getting rid of the swelling and as he said, “How do we know that this number is your normal?” He is the only doctor who offered to give me the IV’s I need to help fight all that goes on in my body.  He is the only one who knows that I am not the “normal” patient and thus does not treat me like a “normal” patient.

And today despite knowing that antibiotics are not good for me or that I only have one truly safe one that I don’t react to, he truly felt that I needed to take one.  The only antibiotic that I haven’t reacted to is Omnicef.  It has been quite some time since I have needed one but here I am taking it.  Soooo – bring on the probiotics.  I don’t dare take this medication without plenty of probiotics even though I am on an antifungal.

I respect my doctor because he does not prescribe medications unless he feels there are no other options.  I have tried the silver, I have tried grapefruit seed extract and I irrigate.  I have immotile cillia and sometimes no matter how much I irrigate the infection just begins and takes over.  The mold exposure and fungal infection has left my sinuses very vulnerable.  My face feels like it has been hit by a MAC truck.  The trigeminal neuralgia on the left side of my face was so bad yesterday (and helped with acupuncture to reduce the severity) but still I had pain in my ear.  The magnesium, glutathione and Vitamin C IV helped with the neuralgia but my maxillary sinuses still hurt.

Dr. Spitzer (have permission to use his name in my book so I feel free to use it here) thank you for being my doctor and not ever for one minute thinking I am crazy and for thinking and working “outside the box” in treating me.  And thank you for fighting so hard for me in my battle to prove my work injury and fighting for me with the insurance carriers.

 

 

Mold – trigeminal neuralgia

Mold and trigeminal neuralgia were put in the search engine today.  I have talked vaguely about my having trigeminal neuralgia.  For those not familiar with trigeminal neuralgia, it is a condition that affects the trigeminal nerve, one of the largest nerves in the head.  It is responsible for sending impulses of touch, pain, and pressure from the face, jaw, gums, forehead, and around the eyes.  Trigeminal neuralgia can feel like a sudden severe shock-like or stabbing pain on one side of the face.  These attacks can last several seconds and happen over and over throughout the day.  Some attacks can last months at a time.

I began developing trigeminal neuralgia as the bacterial and fungal infections in my sinuses continued bombarding me one right after the other.  I developed osteomyelitis (bone infection) in the sinus bone.  I had several surgeries to keep scar tissue and the infection cleared from the bone and the sinuses in general.  The pain was so intense.  I was on pain medication from surgery and it seemed to help.  I couldn’t stop the pain medication or I couldn’t function.  I needed a pain pill in order to stop the pain in the morning so I could get up and start my day and head to work.  I needed a pain pill sometimes in the middle of the day so I could focus on my job.  Lastly I needed a pain pill to numb myself enough to be able to try to sleep.  The pain was so intense that I felt like an ice pick was being jabbed into my left eye and twisted.  The pain would radiate down through my left maxillary sinus, my jaw and my left ear.

When my ENT thought I had been on pain medication too long, he decided to try me on Neurontin (Gabapentin).  It took a large dose to calm the nerves down.  I think the maximum dose was 1800 mg. and I was on 1200 mg.  The face and eye pain calmed down but at the expense of the side effects of the Neurontin.  The side effects for me were dizziness.  I was so dizzy that I was afraid to drive and once walked several miles to and from his office to avoid driving and the possibility of an accident.

As time as moved and we have been able to keep my sinuses in better order, the neuralgia is less frequent.  An exposure to a chemical that I might come into contact with will cause the nasal passages to swell, produce large amounts of mucous and trigger the neuralgia and the pain.  I no longer do well on Neurontin or pain medication (probably from taking so much of it).  Now when it flares I just have to apply heat and rest and wait it out.  A sinus infection whether bacterial or fungal will also trigger the return of the symptoms.  We have to keep my antifungal treatment at a level that keeps the fungal infections from re-occuring as often.  I am including a picture of the trigeminal nerve to show how much of the left side of my face is affected when I have a flare-up.

File:Gray778 Trigeminal.png

Energy balancing, osteopathic manipulation and acupuncture in one

Recently I went to my chiropractor because my left shoulder has been giving me problems.  I experienced this a year ago and with the help of chiropractic work, acupuncture and my IV’s, the shoulder calmed down.

While at one of my sessions with the chiropractor, I mentioned that I no longer had an acupuncturist (mine moved out of the state in January of this year).  He told me he knew an osteopathic doctor  who also did acupuncture including the cupping often used with lung issues like my asthma.  I made my appointment and went to my first visit two weeks ago.

This doctor had never seen anyone quite like me but was encouraging and didn’t make me feel like I was an alien or better yet that I was “crazy”.  The first acupuncture session was going well until another staff member came in wearing body spray to take out the needles.  That set me off into a coughing fit and the doctor had to come and remove them before doing some manipulation.  I left the office feeling like the acupuncture session was good.  However, because of the experience with the body spray I wasn’t sure if this was going to be a good fit for me.

Last week I went again to see how things would go.  I also took with me my letters written by Dr. Rea for her to look at which explains my illness and what I have been through.  She placed the needles and left the room.  When the timer went off she returned and took out the needles.  She talked about the letters and started to do some osteopathic manipulation on me.  One of her first comments was that she felt inflammation on the left side of my face.  I told her that I had experienced an unavoidable exposure the day before and that this was the result, my trigeminal neuralgia acting up.  As she began to help with the inflammation, I could feel the energy in my body moving (much like the energy balancing I had in Dallas at “A Healing Place”  under Deborah Singleton.  At first my thighs became heavy, tingly and warm.  Slowly the sensation went to my calves and then felt stuck at my feet.  She moved down to the legs and then touched my toes.  Immediately my body stiffened and then calmed as the stuck energy was released.

I was amazed.  It was like having three treatments in one.  I had done energy balancing back in Dallas, done acupuncture here at home but never had the osteopathic manipulations.  I walked away feeling terrific and look forward to a session this week.  To learn more about energy balancing and healing, visit www.ahealingplace.org.

Acupuncture

Hooray!  I got my first acupuncture treatment in months.  My acupuncturist moved out of the area and I was still waiting to find some one.

I got some acupuncture and cranial sacral manipulations.  My body feels so much calmer than it did.  Who could imagine that having a few needles placed in specific spots on the body could cause such peace and calm.  I could do this every day!

Daily Posting

I thought I would be able to post daily to my blog.  I have come to realize that my body will decide how often I post.  I have several good days and then a bad day or two.  This is day two of bad days.  I have had a constant headache since yesterday.  Is it the high pollen count and I am being affected by it because my shots have not totally kicked in yet?  Or is it the quality of sleep I am getting?  I also suffer from trigeminal neuralgia due to all the sinus infections and bone infections I encountered from my mold exposure.  The nerves could also be acting up.

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Thank you all for visiting my blog and I look forward to being able to post more excerpts from my upcoming book.