Halloween is almost upon us and I am making Halloween costumes for my grandchildren. I am making a witch costume complete with hat, a cowgirl costume with sequins and a witch apron for my daughter. It is so exciting to be able to do this for my daughter and granddaughters.
There was a time, however, when I never thought I would be able to sew again. The time was the fall of 2002. I was facing a hysterectomy and the possibility of ovarian cancer. I had already been sick for three years from a mold exposure at work. Not only was I facing the upcoming surgery and cancer scare, I was flying back to Dallas to have my surgery. I don’t know what scared me the most the cancer or the surgery. You see I had already developed an acute sensitivity to chemicals and an alarmingly long list of allergic reactions to medications. Would I survive going through the surgery? If I did survive the surgery but had cancer would I be able to tolerate the chemo drugs?
My mortality was starring me hard in the mirror. My daughters were both in college. What could I leave for them? I had always sewn and created things from their clothes, my clothes, shirts for my husband and an assortment of dolls and other crafts. A friend of mine had made this beautiful primitive angel quilt wall hanging. I asked her to help me by going into the fabric store to by the pattern and all the necessary fabrics and notions. If I wasn’t going to return from Dallas I could at least give each of the girls something that I had made especially for them.
The next week I set about laying out all the fabrics and cutting out the pattern pieces. As I began the process of trying to choose which fabrics would be used with which of the angel pattern pieces I began to feel dizzy, my vision seemed to blur and my brain went into overdrive. I had never experienced an anxiety or panic attack but I was having one then. Tears flowed and I began to shake. I was experiencing severe sensory overload. This couldn’t be happening. I quickly put everything back into a bag and put it away. A few days later I made another attempt at laying out all the brightly colored and patterned fabric with the various pattern shapes for the quilt. Once again, that panicky feeling came over me and again I began to cry and shake.
Dealing with depression had become a regular part of my life since becoming sick. The thought of not being able to ever sew again began to sink in. What was I going to do? So much had already been taken away from me and now my one true creative outlet was gone as well.
I have read and been told that when your body is overloaded with toxins and the toxins cannot be excreted through the body in the normal pathways through the liver and kidneys, the toxins find other pathways including the brain. I believe that this is what was causing the brain fog I was already experiencing as well as this new found discovery that visually looking at bright colors and shapes brought on anxiety and panic.
Four years later when my granddaughter was born I yearned to make something for her. I desperately wanted to make her a dress. I searched the internet for a very simple pattern that did not have a lot of pieces and required very little in the way of extras. I ordered the pattern and a simple striped seersucker. The fabric arrived and after washing it a few times to be sure I could tolerate it I began the process of making a dress. I fought the anxiety of laying out basically only two pattern pieces on striped fabric. Something that used to feel so natural and was so relaxing to me now felt awkward and made me nervous. I managed to complete the task. Since then I have gradually tried patterns that were a little more challenging and fabrics with more color. I still won’t buy a pattern that requires a zipper. I am literally terrified about putting one in. I ordered a zipper with intentions of practicing on scraps of fabric. The zipper still sits in its paper packaging.
Recently I was trying to read a blog that I wanted to follow. I have tried more than once but cannot tolerate all the visual stimulation on the page. The colors, the designs and all the material scattered across the page just sends me into a panic. I have tried to keep this blog simple and hope that my webpage will also be calm and easy to navigate.
I keep trying to push through this craziness of visual sensory overstimulation. I don’t know if it will ever go away but I am trying my hardest not to let it rule my life and take away things I once loved to do. Below is a picture of the apron I just finished. As you can see from the details, this took a lot to work out and get myself through with the colors, patterns, and shapes.
I believe this to be true about the body finding other pathways, and that’s why with exposures my eyes are affected so much. As an example, my eyes sting from the acid in the lemons (2 litres of water, and lemons) when I’m detoxing myself; and all inhalation of chemicals affect them too. When I’m better it doesn’t happen.
My daughter had a halloween party many years ago, and I remember we had to ask the children’s parents to wash the clothes in plain water, and not let them spray any products on. They were seven. Now, I’m finding teenagers a whole different ball park when it comes to controlling chemicals on them.
As for visual stimulation, my home page has that flash slider thingy on it. But my other pages are simple. I actually have installed ‘Click to plug in’ that blocks all those things, so I don’t have to be distracted by them when I read. I thought it was only me and never related it to my condition. Here it is: http://hoyois.github.com/safariextensions/clicktoplugin/
As much as I hate having the visual sensory issue and don’t want anyone else to deal with it, I am glad I am not alone. I have tagged this message so that I can check it out later today. I am dealing with a barometic pressure headache which is triggering the trigeminal neuralgia pain in my left eye. Ice pick be removed!
I forgot to mention it but I have a friend with girls in their early 20’s and she deals with it as well. I am fortunate that my daughters are now older and they are very accommodating for me.
I’m so glad you’re starting to be able to sew again. -big hugs-
Thank you so much. It means so much to have gained something back that I thought was lost forever.
I’m an eternal optimist so I believe things will always get better. And sometimes they do. 🙂
I bet some of the panic was brought on by the stresses of illness in general, too. The quilt was an emotional piece, I don’t know if I could do anything like that if I truly thought I was leaving it to stay behind if I died. You are very courageous for even thinking to do that!
On a lighter note, I SO want to see these finished costumes!
I hope my blog is not too overstimulating, I’d never thought of it before. If you did want to keep reading the blog you were talking about, you could try reading it in your email or the wordpress reader, which just makes all sites black type on a white background.
Rachel
I never got to make the quilts because I just couldn’t do it. I ended up taking my favorite recipes and typing them and printing them and making cookbooks for my daughters. Of course as time as passed and they have tried recipes, we have discovered that I sometimes left things out. OOPS! I probably now that my thinking is more clear, update them.
Check out my post Halloween 2 and you will see the costumes.
I haven’t found your blog to be overstimulating so far. I think I might try doing what you suggest with the blogs.
Kathryn